Access to Treatment and Care

Ensuring patients’ access to optimal treatment and comprehensive care is the cornerstone of the EHC’s mission.

Treatment and Care

Access to treatment and care

Access to healthcare is a basic human right and one of the fundamental principles of European health systems, together with safety, quality, and equity. Access to healthcare is recognised as a right enshrined in Article 35 of the Charter of Fundamental Rights.

September 22 – October 31, 2025

Health Economics Course

A unique online course, created to develop an understanding of the economics of bleeding disorders treatment in Europe and help the EHC community to better advocate for their treatment of choice.

This course covers the main concepts of health economics and evidence-based medicine, the health technology assessment (HTA) process, cost-effectiveness analysis, payment models and more. All through the application to and focus on the bleeding disorders.

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Registration is open until September 19

Open Surveys

Mental Health Survey

Fill Out Survey

The survey is available in 17 languages and runs until 9 November 2025.

This important initiative was launched by the EHC Mental Health Working Group, established in March 2025, inviting individuals with a bleeding disorder, as well as their caregivers, to share their experiences related to mental health.

The primary objective is to identify and better understand the psychological and emotional challenges faced by members of the bleeding disorders community. The survey is a central part of the EHC’s efforts to assess community needs and inform future projects.

Mapping the needs of people living with very rare bleeding disorders
in NMOs Survey of European Haemophilia Consortium for individuals

Fill Out Survey

EHC seeks to address the needs of people living with very rare bleeding disorders, as well as to improve their treatment and care and increase their quality of life.

With this survey we would like to reach out directly to individuals living with extremely rare bleeding disorders (if necessary, through their caregivers) to see what their challenges and needs are in order to better understand what support we can offer.

Please help us by answering this short survey. Thank you!