This publication was the first of its kind and was a result of the collaboration of clinicians and patients. The European Principles of Haemophilia Care were developed by an interdisciplinary working group of 45 leading haemophilia doctors from 19 European countries. Over 2 years, this group reviewed current best practice care and guidelines, as well as assessed the needs of those both providing and receiving haemophilia care and treatment in Europe.
European Principles of Haemophilia Care
Representatives from haemophilia patient organizations and specialist haemophilia nurses were also consulted in this process. This document represents the expert view of specialist clinicians in haemophilia concerning the future of haemophilia care and treatment in Europe.
The article was published in the scientific journal Haemophilia in September 2008 and can be accessed here.
